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"In the midst of winter I finally learned that there was in me an invincible summer."

- Alert Camus








Friday, January 11, 2013

World of MS - News - New MSIF advisory group of people with MS

 This is yet another resource that has been created to support people with and affected by multiple sclerosis.  It is heartening not to be forgotten when you get down and depressed and wonder when this relentless fatigue and pain is going to give you a rest.


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New MSIF advisory group of people with MS
The People with MS Advisory Committee (PMSAC) is a newly formed group who will advise the MSIF Board of Trustees on any issues in relation to the needs and aspirations of people with and affected by MS.

PMSAC provides the Board and MSIF Secretariat with advice and perspectives on the needs of people with and affected by MS directly from people with MS.

It is formed of members of the Board with MS, and other people with MS who fulfill an active function in a Member organisation.

Establishment of the group was agreed at the April 2012 Board and Committee meetings, and after a period of scoping and review, the committee has now begun to operate.

Current PMSAC members are:

Chair
Martin Stevens (UK)

Members
John Golding (Norway)
Sophie Galland-Froger (France)
Pille-Katrin Levin (Estonia)
Guy De Vos (Belgium)
Mindy Alpert (USA)

PMSAC will meet twice a year, including once at the annual MSIF Board and Committee meetings.

Network of member society contact persons
MSIF Member organisations will be invited to nominate a contact person who has MS who will connect with PMSAC. The contact persons will be asked their ideas and opinions on MSIF matters.

For more information about PMSAC, please contact Catherine Massey.



Copyright Copyright 2013 International Federation of Multiple Sclerosis Societies, or
Copyright Copyright 2013 Multiple Sclerosis International Federation




Source:
World of MS - News - New MSIF advisory group of people with MS

 http://www.msif.org/en/news/msif_news/new_msif_advisor.html

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