Stay Positive


"In the midst of winter I finally learned that there was in me an invincible summer."

- Alert Camus








Tuesday, September 27, 2011

My Diverse Blog Topics Demonstrate My Struggle To Focus On One Topic By Attempting To Categorize Many Interesting Tings Into Themes

    Work In Progress:
    This account is a member of the following 105 blogs: 


Wednesday, September 21, 2011

Living Well


Guiding principles:

  • Change is a constant
  • adapt to survive and thrive
  • flexibility is the master skill
  • habits are the key to lifestyle and accomplishment
  • we can change current habits and form new habits
  • a simple life is a satisfying life.
  • Cherish every moment


MS Treatment Avenue may expand with brain steroids

MS Treatment Avenue may expand with brain steroids
CBC News
Posted: Sep 21, 2011


Multiple sclerosis might be connected to a lack of steroids in the brain, Alberta researchers have found.

MS attacks the brain and spinal cord, causing inflammation and damage that can lead to paralysis and sometimes blindness.

In the September issue of the journal Brain, neurologist Dr. Chris Power of the University of Alberta Hospital in Edmonton and his colleagues describe a new potential avenue for treating MS.There are some drugs related to neurosteroids that are actively in clinical trials, Dr. Chris Power said. CBC

The discovery centres on neurosteroids, which help brain cells to talk, grow and repair themselves.

The findings open up a brain process "that we might be able to direct so that we can prevent damage and maybe even repair the damaged brain," Power said Wednesday.

Brains of people who died with multiple sclerosis showed lower levels of neurosteroids, the researchers found.

The team believes that by replacing neurosteroids, it might be possible to alleviate symptoms or even prompt recovery, based on the results of their test tube and mouse modeling studies.

"We've actually jumped the queue a little bit because there are some drugs related to neurosteroids that are actively in clinical trials," Power said. "This certainly provides fertile ground."

The researchers aren't yet at the point to start a clinical trial to test whether giving neurosteroids actually help people with MS.

The research was funded by the Canadian Institutes of Health Research, the Multiple Sclerosis Society of Canada, and Alberta Innovates — Health  Solutions.

Wednesday, September 7, 2011

Wednesday, June 29, 2011

Entropy and Chronic Illness

"I wanted you to see what real courage is, instead of getting the idea that courage is a man with a gun in his hand. It's when you know you're licked before you begin, but you begin anyway and see it through no matter what."
- Harper Lee



You meet the challenge of a chronic illness with no cure and no effective treatment like M.S. with the kind of bravery Harper Lee is describing in this quote.  You need to go forward knowing you cannot win this battle but can work around your short comings. 


Every day above ground is a good day.  Everyday is a day to act in positive ways to improve your life and make a contribution to your community.

Thursday, June 2, 2011

Elliot Krane: The mystery of chronic pain | Video on TED.com

Elliot Krane: The mystery of chronic pain | Video on TED.com



We think of pain as a symptom, but there are cases where the nervous system develops feedback loops and pain becomes a terrifying disease in itself. Starting with the story of a girl whose sprained wrist turned into a nightmare, Elliot Krane talks about the complex mystery of chronic pain, and reviews the facts we're just learning about how it works and how to treat it.


Tuesday, May 31, 2011

http://www.psychologytoday.com/blog/turning-straw-gold/201105/how-turn-loneliness-sweet-solitude

How to Turn Loneliness into Sweet Solitude
Being alone without feeling lonely.
Published on May 30, 2011 by Toni Bernhard, J.D. 

Turning Straw Into Gold
Illness through a Buddhist lens.
by Toni Bernhard, J.D.


When my health deteriorated and I had to trade the busy life of a university professor for the isolation of my bedroom, the loneliness was palpable. At times, it was hard to distinguish between the illness and the loneliness.


One day, a friend I'd met online, sent me this quotation from the theologian, Paul Tillich:


"Language...has created the word 'loneliness' to express the pain of being alone. And it has created the world 'solitude' to express the glory of being alone."

I was such a social animal that I found being alone anything but glorious. It wasn't even remotely sweet. But Tillich's words planted a seed and I began to investigate the meaning of "being alone." I realized that being alone in and of itself is neither positive nor negative. It was just a fact that now described a good portion of my life. If Tillich was right, it could be experienced as painful loneliness or as glorious solitude.


So, I went online to see what people treasured about solitude. Here's a sampling of what I found:


"Solitude gets my creative juices flowing. It gives me energy."

"I love solitude because no one is making demands on me."

"When I'm alone, my senses are sharpened and I feel part of the rhythm of the universe.

"Solitude refreshes my spirit."

"I make my wisest decisions when I'm alone."

These statements were inspiring (and I filed them away as possibilities), but they didn't replace the pain of loneliness for me.


As I do when I'm stumped, I turned to the Buddha for help. I thought about his first and second noble truths—that we suffer when we desire for circumstances over which we have no control to be other than they are. I was stuck-like-glue on the desire to have my active social life back. But I can't. It's the nature of my illness that socializing for very long exacerbates my symptoms.



I saw that if I could let go of that desire, I might be able to open my heart and mind to the possibility that solitude could be sweet, maybe even glorious.

I asked myself, "What might I treasure about being alone?" Here's my list, as it's grown over the years:


The quiet soothes my mind and sometimes even reduces the intensity of my physical symptoms, especially if I mindfully follow my breath coming in and going out of my body.

Being alone heightens my powers of observation. I notice details around me that I'd otherwise ignore, like the play of sunlight on the ceiling or leaves floating in the air on a breezy day.

I'm more productive when I'm alone because I can follow a train of thought more easily, especially when I'm trying to write. (My illness can make concentration difficult.)

Being alone allows me to let my body dictate the rhythm of the day—when to nap, when to eat, when to write or crochet.

I can watch whatever I want on TV!

Being alone so much makes my forays out into the world special, as if I'm seeing the world afresh, with new eyes.


Once I opened my heart and mind to being alone, solitude did indeed become sweet. And occasionally, it's even glorious: I'm able to rest in that state of equanimity that the Buddha described—allowing the world to unfold without grasping at the pleasant or recoiling from the unpleasant. When this happens, I, too, feel part of the rhythm of the universe—a "flow-through of matter, energy, and information" as the eco-philosopher Joanna Macy so beautifully expressed it.



I should note that caregivers are subject to loneliness too, cut off as they are from an active social life and often from the company of their loved one who may be too sick to visit.

If being alone is a source of suffering for you, see if you can think of a few positives that come from solitude (even if it's just having sole possession of the remote control!). Maybe, like one of the people I quoted above, you can get those "creative juices flowing" to help you make a list.

I still get lonely on occasion and long for the company of others. When Tillich's "pain of being alone" overtakes me, I don't resist it. Resistance just makes the loneliness harder to bear. Instead, I direct compassion at myself, sometimes repeating a phrase such as, "It's hard to be alone when you want to be with people," or "It's tough to feel like you're missing all the fun."





Sweet Solitude by Edmund Blair LeightonCultivating self-compassion softens the loneliness and makes it bearable. Then I remind myself that the pain of loneliness, like all mental states, comes and goes. It's painful now, but if I'm patient, it will pass and the sweetness of solitude will take its place.



I think that novelist Ann Packer was getting at the same feeling when she wrote in Dive From Clausen's Pier: "Lonely is a funny thing. It's almost like another person. After a while it will keep you company if you let it."

I like to substitute "solitude" for "lonely" in her words: "Solitude is a funny thing. It's almost like another person. After a while it will keep you company if you let it." Solitude as a companion is one of the reasons it has become so sweet.

© 2011 Toni Bernhard

The author of the How to Be Sick: A Buddhist-Inspired Guide for the Chronically Ill and their Caregivers, winner of the 2011 Nautilus Gold Book in Self-Help/Psychology

She can be found online at www.howtobesick.com


Sunday, May 8, 2011

Worry does not help any situation to improve.






“If you could only keep quiet, clear of memories and expectations, you would be able to discern the beautiful pattern of events. It’s your restlessness that causes chaos.”
— Nisaragadatta Maharaj



Peripheral artery bypass - leg

This post is being made because some of the symptoms match my experience with leg weakness.  M.S. often includes leg weakness and pain.



Source:
http://www.nlm.nih.gov/medlineplus/ency/article/007394.htm

Peripheral artery bypass - leg

Peripheral artery bypass is surgery to reroute the blood supply around a blocked artery in one of your legs. Your peripheral arteries can become blocked with fatty material that builds up inside them. This is called atherosclerosis.

See also:
Angioplasty and stent replacement - peripheral arteries
Peripheral artery disease

Description

Peripheral artery bypass surgery can be done in one or more of these arteries to treat a blockage:

Aorta -- the main artery that comes from your heart
Iliac artery -- in your hip
Femoral artery -- in your thigh
Popliteal artery -- behind your knee
Tibial and peroneal artery -- in your lower leg
Axillary artery -- in your armpit



Why the Procedure is Performed


Symptoms of a blocked peripheral artery are pain, achiness, or heaviness in your leg that starts or gets worse when you walk.

You may not need bypass surgery if these problems happen only when you walk and then go away when you rest. You may not need this surgery if you can still do most of your everyday activities. Your doctor can try medicines and other treatments first.

Reasons for having arterial bypass surgery of the leg are:

Your symptoms keep you from doing your everyday tasks.

Your symptoms do not get better with other treatment.

You have skin ulcers (sores) or wounds on your leg that do not heal.

You have pain in your leg from your narrowed arteries even when you are resting or at night.


Before surgery is considered, the doctor will order special tests to show that you have a severe blockage in your blood vessels.




Risks for this surgery are:

Bypass does not work
Damage to a nerve that causes pain or numbness in your leg
Damage to nearby organs in the body
Damage to the bowel during aortic surgery
Excess bleeding
Infection in the surgical cut
Injury to nearby nerves
Sexual problems caused by damage to a nerve during aortofemoral or aortoiliac bypass surgery
Surgical cut opens up
You need to have a second bypass surgery or a leg amputation
Before the Procedure

Your doctor will do a thorough physical exam and several medical tests.
Most people who have a peripheral artery bypass first need to get their heart and lungs checked.

 
Outlook (Prognosis)

Bypass surgery improves blood flow in the arteries for most people. You may not have symptoms anymore, even when you walk. If you still have symptoms, you should be able to walk much farther before they start.

Your results will depend on where your blockage was, the size of the blood vessel, and whether you have a blockage in your other arteries.



References


Creager MA and Libby P. Peripheral arterial disease. In: Libby P, Bonow RO, Mann DL, Zipes DP, eds. Libby: Braunwald's Heart Disease: A Textbook of Cardiovascular Medicine. 8th ed. Saunders; 2007:chap 57.

Eisenhauer AC, White CJ. Endovascular treatment of noncoronary obstructive vascular disease. In: Libby P, Bonow RO, Mann DL, Zipes DP, eds. Braunwald's Heart Disease: A Textbook of Cardiovascular Medicine. 8th ed. Philadelphia, Pa: Saunders Elsevier; 2007:chap 59.


Update Date: 1/25/2011


Updated by: Shabir Bhimji, MD, PhD, Specializing in General Surgery, Cardiothoracic and Vascular Surgery, Midland, TX. Review provided by VeriMed Healthcare Network. Also reviewed by David Zieve, MD, MHA, Medical Director, A.D.A.M., Inc.
Browse the Encyclopedia
http://www.nlm.nih.gov/medlineplus/ency/article/007394.htm

MedlinePlus Topics

Peripheral Arterial Disease


Read More

Angioplasty and stent placement - peripheral arteries
Peripheral artery disease - legs


Patient Instructions
Aspirin and heart disease





The information provided herein should not be used during any medical emergency or for the diagnosis or treatment of any medical condition. A licensed physician should be consulted for diagnosis and treatment of any and all medical conditions. Call 911 for all medical emergencies. Links to other sites are provided for information only -- they do not constitute endorsements of those other sites. Copyright 1997-2011, A.D.A.M., Inc. Any duplication or distribution of the information contained herein is strictly prohibited.


Wednesday, April 20, 2011

Cold Feet

A neurologist explains cold feet...
by Ccsvi Transverse Myelitis

"The complaint of cold feet is common in MS, even in the milder forms of the disease.The maintenance of skin temperature is an involuntary process under the control of that portion of the nervous system referred to as autonomic, which controls functions such as heart rate, sweating, and pupil dilation.

Short-circuiting in the interconnections that control the diameter of blood vessels and those nerves that sense temperature appears to be responsible for the perception of cold feet.

This symptom may be annoying, but it usually is innocuous. There is nothing wrong with the blood vessels themselves in the legs or feet, and there is nothing dangerous in the slight drop in temperature that produces this sensation. It should be emphasized that cold feet do not signify a general circulatory problem. Most people who have this symptom are young and have normal blood vessels.

Although they are not protected from vascular disease by MS, they are no more likely to have it than are others of a similar age. Nonetheless, if the problem is severe it should be checked out by a physician.

The best way to manage the problem of cold feet is with warm socks, an electric blanket, and similar local treatments.

Occasionally, niacin or medications that dilate blood vessels may be used to alleviate this symptom when it is particularly annoying."

Source:
Managing the Symptoms of Multiple Sclerosis by Randall T. Schapiro, Director of the Shapiro Center for Multiple Sclerosis at the Minneapolis Clinic of Neurology, Clinical Professor of Neurology, 5th Edition, (2007) page 109.